August 30, 2008

Hospitalization narrowly avoided

Yesterday was a horrible day for me. All week I was nervous about Niklas's health and decided to take him to the Pediatrcian on Friday morning. When we walked in, and were waiting to check in he began his coughing and the doctor standing there said "I know HIS diagnosis!" Then we were asked to stay in the infection room rather than the regular waitingroom (at least it had nicer toys there).

Once the Chief doctor came in he was quite serious and said Niki has this. Great. Lets add that to the bronchitis and pnemonia, ear infections and tonsillitis. The poor kid, not only does he have a barking cough but big black circles under his eyes from not being able to sleep or breath too well. The doctor was truly worried and made up all the paperwork and sent us to the hospital in Kaiserslautern. He gave Niki a steriod suppository (Prednisone).

I didn't plan on it going that direction (We usually walk out of his office with antibiotics, and that is what I thought would happen again.) I had some errand to do--including meeting people on the military base that bought some stuff from my on-line yard sale. So we went to get things done first.

BTW, I don't think I will do the yard sale thing again unless it is a big item. People say they will buy things but don't show up(and I listed it as sold and lose other buyers), or show up 2 hours past the apointed time, or they don't have space in their car for the large items (go figure) or the right amount of money. Plus some people that came to my house walked around and would see the piano and say they wanted to buy it...Um, everything I own is NOT for sale... I think in the future I will stick to giving away stuff. Only one of the 4 people showed up for the meeting.

Afterwards I thought that I better go pick up Jenna since I doubted that we would be done at the hospital (which I thought they were just going to do another Xray and blood work) by the time her bus would take her home. So I picked her up and stopped at Burger King for lunch for the kids and we took it to eat at the hospital (I rightly assumed there would be a lot of waiting time).

The first real aggrivation was finding it. It is in an obscure place in the city center. Once I did locate it I had trouble finding parking. I tried to park along the street but you must buy a ticket at the little stands along the road and you must have correct change (and I only had a bill). So I finally decided to go to the parking garage. Then I got the kids out and discovered Jenna had made poop and had to change her diaper. Then Niki had to go potty and I worried we would make it in time so he wouldn't pee his pants. I pulled them along and tried to find the Kinder Klinik on the small campus as fast as I could! After averting the pee crisis, I took the paperwork to the front desk and they instructed me I must go register (insurance) at another building. I was surprised since I didn't expect this and they said that likely he will be on IV antibiotics over the weekend and have surgery early next week and have to stay another 7 days beyond that. I was sick with anxiety at that point. I went back out to the car and had trouble finding my parking ticket. You have to have that to place in a machine and pay for it before you drive out. I finally did find it.

I called Günter and he was in a meeting in Frankfurt and wouldn't pick up the phone. I tried 3 times then got very mad. I looked for phone numbers to call some friends locally, but had nothing in the car. I was very aggitated!

I drove out of the parking garage and went to park along the street only to find out that I needed not only 1 euro coins but also a 50 piece--the machine doesn't make change! I ran to a shop (left the kids in the car) to get change. When I was coming back I saw someone leave a space open right by the hospital so I turned the car around to park there. Once I arrived, it was taken. Since it was one-way streets I had to go around the area to get back to the street I originally went on and all the spots were taken by then. I had to park several blocks away at the bottom of the hill.

While we registered Jenna was eating her cheeseburger and Niki was playing with the glass doors to the room, and I was trying to understand the receptionist (who only spoke German) while watching the kids and giving information about Niki and the insurance. It was nerve wracking to me! Then I took the kids back to the Kinder Klinik and we were seen by doctor but Niki's cough was much better (I assume from the steroid).

I then had to take the kids to the ENT clinic and we waited over 1 hour (with no toys in the waiting room) to be seen. Did I say I was on my last nerve? When we were seen the doctor asked if I wanted him to have a tonsilotomy or tonsilectomy and if we wanted it there or with Dr. Baker (his normal ENT). I really didn't know. I mean no one was telling how bad it was and if it was emergent. I knew his airways were problematic, but that was all. Then they asked if I had given him ibruprophen. Yes, for his fever. Then she said they can't give surgery for 4 weeks since the last time it was taken. You have got to be kidding! I was upset. She went and got the chief doctor and he explained that there is a high risk of complications with bleeding and they won't do it. I lost it about then. I said, well if he dies because he can't breath, isn't that a greater risk! He checked his tonsils and said even though they are extremely enlarged, there is enough space for air to go through and he won't suffocate. How comforting. If he is so sick the Pediatrician sent us there, and they can't do anything to treat, why were we there? The kids kept touching the tools and going around the room and I had trouble concentrating, and weighing my options while the doctors talked. Several times they asked the kids to be quiet--yeah, right--like they listen to anyone.

That is the time I made up my mind we are not staying. I went back to the Child doctor and explained it all and said that I didn't think he needed to stay in the hospital if he could have the antibiotics orally at home. I talked him into it and he gave me a very high level to give as well as the steroid (Prednisone) and a special medicine for coughing.

As I was taking the two tired, one sick child to the car, all I could think of was Jenna's hospitalization and how stressful it was trying to keep her still in a bed (with an IV line in) when she is so active and there was nothing to do. I was so grateful we avoided this, for now. I felt liberated!

I still don't know what to do besides the medicines. I will call our regular ENT on Monday and tell him the situation. I wish I had someone to help me decide if we should have a partial or full tonsilectomy and tubes in his ears. What is the best? I don't want to continue having all these problems with his health and don't know if it will help or further hinder things.

After the kids went to bed I just wanted to vegetate, which I did by watching a movie. I hope I can get my equalibrium back. Niki will have to be home the next week while he is on the medications, so I won't have any freedom in the days to come. Being a mom is so much harder than I thought it would be.

Posted by Krista at August 30, 2008 11:52 AM
Comments

I feel for you! I think KL kinder klinik is the hospital we spent a week in with Margot in 2004. And I totally know what you mean when you get to the end of the rope (?) and you are so distracted by the kids that you can't focus on the doctor and you just want to get out of there and go home!
I don't have an answer for your medical questions but Guillaume seemed to be having earaches when he was little and his glands would swell up really bad so he looked like a chipmunk. I had a doctor (in KL) tell me that kids' 'plumbing' isn't very good yet and his problem was actually the salivary glands were clogged - so I should have him eat a lemon to get those glands working overtime!
If croup is whooping cough Alienor had it when she was about 3, no other symptoms but a bad cough. I finally took her to the doctor (which I tend to avoid doing!) when she lost her voice. He said it was whooping cough and was so apologetic that he couldn't give me some medication for her (another thing I try to avoid!) but I didn't want medication - just to know what was wrong with her. It's just one of those childhood illnesses they have to live through.
I don't have any other advice or info, but I can commiserate with you about the doctors and kids and stuff!
Hang in there. Oh, we will probably be going to the temple in Frankfurt this Weds. or Thurs. and we'll probably be staying in Weisbaden for the night (hotel with pool!). I'll keep you posted in case we go through your area and could stop and say hello.
Jocelyn

Posted by: Jocelyn Duffort at August 30, 2008 11:16 PM

I am so sorry Krista. What a rough day! We will keep Niklas in our prayers. It is so hard to have sick kids, especially when it becomes serious. I am sending you my love and hugs and also calm and serene thoughts.

Posted by: Marnie at August 31, 2008 06:23 PM

Wowsa! Wowsa! What a nightmare-of-a-day. I felt your stress while I was reading your account and began chewing my OWN nails. Ha! How frustrating to go through ALL of that just to be told that you would have to wait 4 weeks anyway because you had given him ibuprofen! Argh! It's too bad you couldn't alleviate all that hassle with the question being posed in the very-very beginning. Sigh...Laura had a complete tonsillectomy with tubes. She had so much drainage and such huge tonsils, that they did the complete tonsillectomy. I've never regretted it. My regret is whent hey just took out the adenoids and not te tonsils at the same time, because once the adenoids were removed, her tonsils blossomed into HUGE nuggets and her real breathing problems began. And, how aggravating can it be when you really need to talk with someone (meaning your husband) to process your thoughts and calm your nerves, they aren't available or answering their phone--I think that just adds to the stress. You sounded nervous and scared. I would be, too. Is Niki doing any better being on the meds? I know it is a short-term fix in the meantime, but I at least hope he's doing better. You're in my thoughts and prayers. I luv ya! Take care and do some very deep breathing :0)

Posted by: Jeni at August 31, 2008 11:30 PM

What a whirlwind day! A F/T nanny would be nice, huh?!! Boy, Niklas is dealing with the full gambit-- viral, bacterial & inflammatory problems. No wonder it's hard to set priorities! I wonder if he has allergies that set up his system for these other things. Waiting 4 weeks after some ibuprofen seems ridiculous. Here its 24-72 hours. Back to Tylenol I guess. I know I wouldn't hesitate about a tonsilectomy if you can eliminate a chronic source of infection. I would hope Dr Baker would give more time to you after Friday's ordeal at Kinder Klinik and help you sort through all this. Mom's minds shutdown after a certain stress level and making a decision is impossible! Are you able to send Guenter a text message? That can be a life saver when they can't answer the phone b/o meetings. That's one good thing about texting! Keep us posted-- your Kindred Spirit Support group!

Posted by: Dana at August 31, 2008 11:45 PM

Hey Krista--
I'm one of those "lurkers" you wrote about in an earlier blog. I think this is the first comment I've ever posted on a blog, but I'll try to do better. I hope everything works out wtih Niki's health issues. Remember the saying, "Being a parent isn't the easiest job in the world, but it's the most important." And I'm here to witness that they do grow up--and you'll spend time wistfully wishing for the good old days when they were little!

Posted by: Elaine at September 1, 2008 02:42 AM

Krista, oh boy, so sorry about THAT day. Mom's always seem to have a few of those thrown in with the mix. You are tough I would have quit before lunch and ran to get reinforcements. =) I hope he is doing better!

Posted by: Leslie at September 1, 2008 10:22 AM

OK here we go... I'm feeling your pain..it's really hard on day like that when all you want to do is climb back in bed throw the covers over your head and say "I'm not getting up EVER again!". I hope that Niklas is starting to do better. I have no realy knowledge about the whole tube and tonsil thing, sorry. Jude might be a good one to sak about that... Just know that days like that do come to an end and then we get to try the next day for a better one...RIGHT? I love ya.. Erika

Posted by: Erika at September 1, 2008 04:16 PM

That does NOT sound fun! I feel for you, it seems you guys have long had more than your share of sicknesses!! And that yard sale thing, seems like another nightmare as well!!

Posted by: Kari at September 1, 2008 06:22 PM

What a day! I'm so sorry-days like that ARE nerve wracking and are so frustrating. Those are the days when I could down a whole gallon of ice cream and just collapse on the couch. Here's hoping you don't have one of those days again for a while!

Posted by: Holly at September 2, 2008 11:27 AM

Oh, Krista! What a day...I hope that you are feeling better and that the last couple of days have been less stressful for you! Maybe one of the docs at church would be able to advise you about Niki. I'm sorry you seem to only get half the info you really need from the docs/nurses. I can only imagine how frustrating that is!

And I can totally relate to not being able to get your husband on the phone when you could really use some backup!

Breath in, breath out...eat some chocolate...(((HUGS!)))

Posted by: Angi at September 3, 2008 09:09 AM